Deutsche Alzheimer Gesellschaft

In March 2019 the Ethics Conference of the German Center for Neurodegenerative Diseases (DZNE) was held for the fifth time. It was organized by the DZNE Rostock/Greifswald site and chaired by Prof. Wolfgang Hoffmann. The conference provided scientists, physicians, representatives of the German Alzheimer Society, (informal) caregivers of people with dementia (PwD), and other interested people with the opportunity to talk about the opportunities and limitations of research on and for PwD.Nationally and internationally recognized experts on healthcare services research, clinical research, nursing research, (geriatric) psychiatry, interdisciplinary ageing research, economic law, and psychotherapy discussed the pros and cons of amultitude of topics like self-determination, research participant decree, informed consent, and participation of PwD in research. The aim of the event was to reconcile the view of practice pleading for an ethically correct, human treatment of PwD and respecting their autonomy with participation in (clinical) studies. Experts controversially discussed and consolidated different points of view of practice and research.

Die Liste der Wünsche ist lang: Bei jeder Art von Kontakt zwischen Arzt und demenzkrankem Patienten und seinen Angehörigen, sei es in der Praxis, in der Klinik, bei der Rehabilitation oder im Pflegeheim, können Wünsche formuliert werden. Es mangelt weiterhin an ausreichendem Wissen und dessen Umsetzung. Die komplexe ärztliche Betreuung Demenzkranker wird nicht genügend in der ärztlichen Aus-, Weiter- und Fortbildung und den Abrechnungsschemata berücksichtigt.