Hidden disability: a study of the psychosocial impact of living with pituitary conditions.

ObjectivesTo assess the severity of menopausal symptoms and the correlation among different quality of life questionnaires and compare the quality of life of patients who underwent hematopoietic stem cell transplantation (HSCT) for hematological disorders with the norm group in order to facilitate personalized and directed therapeutic intervention for patients.MethodsWe recruited women who had premature ovarian failure (POF) after HSCT for hematologic diseases in the gynecological endocrinology outpatient clinic of Peking University People's Hospital. Women with HSCT were included in the study if they had 6 months of spontaneous amenorrhea with serum follicle-stimulating hormone levels greater than 40 mIU/mL taken 4 weeks apart. The patients who had other causes of POF were excluded. During the survey, all women were required to fill out the questionnaires [Quality of Life Questionnaire (MENQOL), Generalized Anxiety Disorder-7 (GAD-7), Patient Health Questionnaire-9 (PHQ-9), and 36-item Short-Form (SF-36)] online. We analyzed the severity of menopausal symptoms, anxiety, and depression in Participants. In addition, differences on the SF-36 scale scores between the study group and norm groups were examined.ResultsIn total, 227 (93.41%) patients completed the survey and were analyzed. The severity of all symptoms is “none and mild” in MRS, MENQOL, GAD-7, and PHQ-9. On the MRS, the most common symptoms were irritability, physical and mental exhaustion, and sleep problems. The severest symptoms were sexual problems (53, 73.82%), followed by sleep problems (44, 19.38%) and mental and physical exhaustion (39, 17.18%). In the MENQOL, the most common symptoms were psychosocial and physical symptoms. The severest symptoms were sexual symptoms (35, 48.75%) followed by psychosocial symptoms (23, 10.13%). Moderate-severe scores were shown in 11.89% (27) and 18.72% (42) cases in the GAD-7 and PHQ-9, respectively. Based on SF-36, in comparison with the norm group, the HSCT participants had higher vitality scores and lower role physical, physical functioning, and role emotional scores aged 18–45. In addition, the HSCT participants had lower mental health scores aged 18–25, and lower general health scores aged 25–45. No strong correlation was observed between questionnaires in our study.ConclusionOverall, menopausal symptoms are milder in female patients after HSCT. There is no single scale that comprehensively assesses the patient's quality of life after HSCT. We need to assess the severity of various symptoms in patients using different scales.

IntroductionLymphoedema is an incurable, progressive condition, which results in the swelling of a limb or limbs and impairs mobility (Lymphatic Framework, 2006). The psychosocial impact of lower limb lymphoedema is also devastating as body image and quality of life are greatly affected (Lasinski et al, 2012). Although lymphoedema is a chronic condition, it is manageable through treatment modalities which include manual lymphatic drainage, compression bandaging, compression hosiery, skin care and exercise, otherwise known as Complex Decongestive Therapy (CDT) (Todd, 2012). The area of lower limb, non-cancer related, lymphoedema is poorly resourced and poorly researched, therefore this thesis proposes to explore treatment outcomes for patients with non-cancer related lower limb lymphoedema during the intensive and maintenance phases of CDT,examine their experiences of living with lymphoedema and the challenges of lifelong self-care maintenance.Research QuestionsThe research questions for the study were as follows;1. What is the impact of Complex Decongestive Therapy (CDT) as a treatment for primary and secondary lower limb lymphoedema during the intensive and maintenance phases of CDT, in relation to;a. Quality of life?b. Limb circumferential and volumatic changes?c. Self-efficacy in managing lymphoedema self care?2. What are the patients’ experiences of living with lymphoedema?3. What are the patients’ experiences of the four elements of CDT used during the intensive and maintenance phases of treatment?Aims & ObjectivesThe aims of this study were twofold;1. To examine the impact of Complex Decongestive Therapy (CDT) as a treatment for primary and secondary, non-cancer related, lower limb lymphoedema during the intensive and maintenance phases of CDT;2. To explore the experiences of patients with primary and secondary, non-cancer related lower limb lymphoedema during the intensive and maintenance phases of CDT.The objectives of the study are as follows:1. To determine the impact of CDT on limb circumference and quality of life.2. To explore the patients’ experience of living with lymphoedema.3. To investigate the patients’ reported experience of the four elements of CDT.4. To examine the patients’ reported maintenance regimen of self-care and its resulting effect on limb volume and quality of life.MethodsA mixed methodology, using both quantitative and qualitative data in a sequential manner was used. This study was divided into 3 parts,Part 1 a quantitative approach was used to measure;a) Limb volume changes.b) Quality of Life changesc) Self-efficacyPart 2 –A qualitative approach was used to analyse data from face to face, semi-structured interviews with 18 participants exploring the experiences of patients living with lymphoedema and their experiences of Complex Decongestive Therapy.Part 3 – Descriptive analysis of 18 participant diaries was used during maintenance self-care, over a 4-month period, to examine the participants’ experiences of lymphoedema self care.ResultsA purposive sample of 20 participants were recruited to this study All participants were diagnosesd with lower limb lymphoedema, 10 participants had primary lymphoedema and 10 participants had secondary, non-cancer related lymphoedema. The study setting was a lymphoedema clinic in the Midlands of Ireland, run by the researcher who is also a Tissue Viability Nurse and Manual Lymphatic Drainage Therapist.The findings included a reduction in limb volume from baseline to week 8 during intensive therapy and then a fluctuation of oedema for 6 of the participants during the 4-month self-maintenance period. Quality of life improved for all participants from baseline to week 24. Thematic analysis of the interviews identified themes of lack of knowledge, delayed diagnosis, physical, psychosocial and financial burden of lymphoedema and positive therapeutic effect of treatment. The diary analysis identified self-care challenges that were influenced by elevated body mass index and carer support.ConclusionPrimary and secondary, non-cancer related lower limb lymphoedema is an area of lymphoedema that is poorly researched. It is also true to say that there is a sparsity of research in the area of lymphoedema self maintenance care. The aims of this research study were twofold, to explore patient outcomes with regard to limb volume, quality of life and self-efficacy during the intensive and maintenance phases of CDT and to examine the experiences of the patients living with lymphoedema, during their treatment and following on into self maintenance. The findings included reduction in limb volume during therapy, an improvement in quality of life and a fluctuation in self-efficacy that was influenced by elevated body mass index. Thematic analysis of interviews concluded that living with lymphoedema poses many challenges resulting from poor knowledge within the health professions and a lack of referral pathways and services. The success of lymphoedema self maintenance is greatly influenced by the patients physical ability and support structures, especially in the case of the patient with an elevated body mass index.

Based on this review there is currently very uncertain evidence on the effectiveness of video call interventions to reduce loneliness in older adults. The review did not include any studies that reported evidence of the effectiveness of video call interventions to address social isolation in older adults. The evidence regarding the effectiveness of video calls for outcomes of symptoms of depression was very uncertain. Future research in this area needs to use more rigorous methods and more diverse and representative participants. Specifically, future studies should target older adults, who are demonstrably lonely or socially isolated, or both, across a range of settings to determine whether video call interventions are effective in a population in which these outcomes are in need of improvement.

Dear Editor, Infertility is a real crisis of life, which leads to depression, anxiety, social isolation and sexual disorder. The people, who look for the treatment of their infertility, are more anxious and worried than other people in the society (1). Every year, more than one million children are born all over the world, by these assisted reproductive techniques (2). Another factor is added to the indices of mortality, birth, outbreak and onset of the disease, and that`s the quality of life (3). The quality of life means the people`s perception of their own position in life from the view point of culture, the value system they live in, purposes, norms, expectations and priorities. The quality of life is a personal affair, based on the person`s perception of different aspects of life (4). This research is a Cross-sectional study. 146 infertile women, being pregnant through the assisted reproductive techniques in the Royan Institute, were selected as the case group, and also 130 fertile women, being normally pregnant, were selected among those visited by gynecologists, as the control group. All of these women were experiencing their first pregnancy; they were residents of Tehran, and between 20 – 35 years old. After exerting the exclusion criteria, including the postpartum depression, disability, or uncontrolled disease of the mother or baby, multiple birth, stillbirth and the newborn`s death, about 86 infertile mothers and 76 fertile mothers answered the Persian questionnaire about the quality of life (SF 36), which was standardized in the Research Institute of Health Sciences, to be applied in Iran, not only through the last three months of pregnancy, but also after the first month of delivery. To study the difference between the fertile and infertile mothers` quality of life before and after delivery, independent sample t-test and paired t-test were applied. The results show that there is no difference between the fertile and the infertile mothers` quality of life during their pregnancy period (P = 0.17), but after the delivery, the average quality of life in fertile mothers will be higher than infertile mothers (P = 0.02). Also the average quality of life in fertile mothers, after the delivery is higher than that before the birth (P = 0.04). The average quality of life in infertile mothers after delivery, is also higher (P < 0.001) than that in their pregnancy period (Table 1).The changes in the quality of life of the mothers of the children born through infertility treatments, comparing to fertile mothers, has increased after the delivery (P = 0.03). As a result of this research, the quality of life in pregnant mothers either fertilized normally or through assisted reproductive techniques, did not show a significant difference during the third three months of pregnancy. In a survey carried out in Valiye-asr reproductive health institute, the results revealed that the pregnancy chance in unfertilized persons, suffering less stress and depression, is more than the others, (5) this might have led to the improvement of their quality of life. Table 1. The Quality of Life in Normal Pregnancy and Infertile Pregnancy Group Before and After Delivery After delivery, the quality of life in normally pregnant women is significantly better than during pregnancy (P = 0.04). In a research published in 2005, the quality of life was studied in about 29 healthy pregnant mothers, and the results showed that as the mother approaches the delivery time, her quality of life decreases, but after the delivery, this quality improves (6). The quality of life in pregnant mothers who are fertilized through fertility-assistant methods, was significantly higher after the delivery, and was even higher than the quality of life in fertilized mothers after their delivery (P = 0.04). As a whole, the improvement in the quality of life in mothers, pregnant through the fertilization-assistant method, was higher than that of the normally fertilized mothers. The reason probably was due to the removing of the infertility mark, they had to tolerate before, since the evidences indicate that their infertility deeply and emotionally affects their life (7). Paying attention to the aspects of the infertile mothers` quality of life and also planning to upgrade that, may lead to the upgrade of the infertile couples` health level, consequently there is the necessity for more investigations into the men and women`s quality of life.

Quality of life (QOL) in dementia has become increasingly recognized as an important clinical and policy concern, but little is known about the progression of QOL in patients with advanced dementia on psychogeriatric units of nursing homes. Therefore, the primary goal of the current study was to assess the evolution of QOL in advanced dementia patients on a psychogeriatric unit. The QUALIDEM scale, a reliable and validated QOL instrument developed for patients with advanced dementia in residential settings who are unable to self-report, was assessed at baseline and 2 years later. Of the 75 patients with advanced dementia included at baseline, 32 patients participated at follow-up. Average QUALIDEM QOL scores did show a trend towards a significant improvement over a 2-year period. For 61.8% of the subjects at follow-up, the average scores improved. On the subscales that assessed 'feeling at home', 'social isolation' and 'negative affect', improvement was significant. Although it could be expected that QOL would decline over time in advanced dementia patients, results of the current study suggest that QOL is stable or improves despite the global cognitive deterioration, particularly in the more advanced stages of dementia. QOL is a distinctive domain of disease severity that should receive more attention in the advanced stages of dementia.

Questionnaires to Assess Urinary and Anal Incontinence: Review and Recommendations

BackgroundLife satisfaction (LS) of cerebrovascular disease survivors and their family caregivers may relate to socioeconomic factors, impaired functions, health-related quality of life (QoL), but their respective influences remain unclear. This study assessed, two years post-stroke onset, the effects of these factors on patients’ LS and family caregivers’ LS in Luxembourg.MethodsAll stroke patients admitted to all hospitals in Luxembourg were identified by the ‘Inspection Général de la Sécurité Sociale’ using the only national system database for care expenditure reimbursement. Their diagnosis was confirmed by medical investigator. The sample included ninety four patients living at home having given consent (mean age 65.5 years) and sixty two main caregivers (mean age 59.3 years). Questionnaires were completed during face-to-face interviews. LS was assessed via European single question (range 1–10), survivors’ QoL via Newsqol (11 dimensions), and caregivers’ QoL via Whoqol-bref (4 domains) (range 0–100). Data were analysed using multiple regression models.ResultsTwo years after stroke onset, 44.7% of patients suffered from impaired sensory function, 35.1% from impaired motor function, and 31.9% from impaired memory function. Mean patient’ LS was 7.1/10 (SD 1.9). It was higher in women (+12.4) and lower among unemployed socioeconomically active patients (−13.1, vs. retired people). Adjusted for sex, occupation, impaired motor and memory functions, LS positively correlated with scores of Newsqol feelings, sleep, emotion, cognition and pain dimensions (slopes 0.20 to 0.31), but did not correlate with those of caregivers’ Whoqol-bref domains. Family caregiver’ LS was 7.2 (SD 1.7). It was lower in those with patients suffering from impaired memory function (−12.8) as well as from feelings and emotion issues (slopes 0.22). It was associated with all caregivers’ Whoqol-bref domains (physical health, psychological health, environment, and social relationships) (slopes 0.53 to 0.68).ConclusionsTwo-year post-cerebrovascular disease patient’ LS was associated with gender, occupation, and impaired memory function. It correlated with feelings, sleep, emotion, cognition, and pain issues. Family caregivers of patients with impaired memory function had lower LS. Family caregiver’ LS correlated with dimensions of patients’ feelings (less independent, yourself, life changed, depressed, useless, less control because of stroke) and emotion (get more emotional, fear of another stroke or to become dependent on others), and with their own QoL. LS, Newsqol, and Whoqol appeared to be appropriate tools. Our findings may be useful for policy makers in relation to family and medical-social issues of stroke home-based rehabilitation.

This study aimed to understand the types and characteristics of lonely elderly from the perspective of social isolation and compare their differences in quality of life (QOL). A cross-sectional survey of 2148 lonely elderly in Shanxi province, China was conducted. The latent profile analysis was used to classify the lonely elderly and describe their characteristics. A hierarchical multilinear regression method was applied to evaluate their differences in QOL. The lonely elderly can be divided into two categories: Class-Ⅰ, in low social isolation with a significant correlation between social isolation and loneliness (p < 0.05), and Class-Ⅱ, in high social isolation with no significant correlation between social isolation and loneliness (p > 0.05). QOL of Class-Ⅰ was significantly higher than that of Class-Ⅱ. Class-Ⅱ was in a state of self-imposed isolation with poor QOL and should be the focus-group during practical intervention.

This study aimed to investigate the different effects of fatigue and health-related quality of life in the Turkish mothers of children with autism spectrum disorder (ASD) through comparisons with mothers of typically developing children, and to evaluate the relationship between different aspects of maternal fatigue, depression, and maternal health-related quality of life. The study included a total of 103 mothers, comprising 60 mothers of children with ASD and 43 mothers of typically developing children. The Nottingham Health Profile and Quality of Life in Autism Questionnaire-Parent Version were used to assess the health-related quality of life. Fatigue was assessed comprehensively with the Fatigue Impact Scale and the Fatigue Severity Scale. The Nottingham Health Profile total and physical mobility domain and the quality of life were the strongest factors, explaining with a variance of 66.7% the fatigue impact on cognitive function. The mothers’ quality of life accounted for 64.8% of the variance in factors that explained fatigue. Physical mobility, social isolation and quality of life were associated with the physical impact of fatigue and were explained with a variance of 52.4%. Emotional reactions and quality of life were explained with a variance of 52.7% in the fatigue of psychosocial function. The current study has highlighted that the fatigue of Turkish mothers of children with ASD has a greater impact on cognitive, physical and psychosocial functions. Furthermore, the quality of life, physical mobility, social isolation, and emotional reactions of mothers have a significant impact on maternal fatigue.

COVID-19 has caused a global pandemic that has spread rapidly to six continents, with over 2.5 million deaths from December 2019 to March 2021. The number of confirmed COVID-19 cases is still growing worldwide, and quarantines have been recommended to prevent the disease’s spread. However, quarantines affect people’s quality of life (QOL). The aim of this study is to assess the effect of social isolation—quarantine—on QOL during the first wave of the COVID-19 pandemic in Saudi Arabia. A cross-sectional, descriptive design was used in the present study. We obtained data from an online survey conducted in Saudi Arabia. We included a convenience sample of 775 participants in the study. Most of the participants were female (67%), with a mean age of 46 years ranging from 18 to 75 years. Many participants were government employees (n = 308, 39.7%) and had a bachelor’s degree or greater (n = 513, 66.2%). Most of the participants (n = 629, 81%) were free from any chronic disease. Nearly 88% of participants were partially isolated socially owing to COVID-19. Concerning QOL, the means of both the Physical Health Composite Scale and the Mental Health Composite Scale SF-12 scores were 44.7 and 34.6, respectively. Furthermore, the results demonstrate that partially socially isolated participants appeared to have significantly better physical health statuses (M = 44.96, SD = 5.90) than completely socially isolated participants (M = 42.87 ± 7.26). There was no significant social isolation effect on mental health status (t (773) = 2.5, p = 0.115). Social isolation during the COVID-19 pandemic considerably influenced various aspects of QOL including physical and mental health. Community-based interventions such as online counseling services and wellness programs are required to reduce the pandemic’s negative impact and enhance overall health status and QOL.

During the COVID-19 pandemic, safe-distancing measures resulted in many community-dwelling older adults being socially isolated and lonely, with its attending negative impact on wellbeing and quality of life. While digital technology may have mitigated this, older adults of low socioeconomic status (SES) are more likely to be digitally excluded and hence susceptible to the adverse effects of social isolation and loneliness. This study aims to understand the factors that affect digital literacy, smartphone ownership, and willingness to participate in a digital literacy program (DLP), and to test the hypothesized relations between digital literacy, social connectedness, loneliness, wellbeing, and quality of life amongst community dwelling older adults of low SES. A questionnaire assessing digital literacy, social connectedness, wellbeing and quality of life was administered. Socio-demographic variables, pre-existing internet-enabled, and willingness to participate in a home-based DLP was also collected. Logistic regression was used to identify demographic factors associated with digital literacy, smartphone ownership, and willingness to enroll in a DLP. Serial mediation analysis was also performed using a structural equation model framework. A total of 302 participants were recruited. Female gender, older age, lower education levels were associated with lower digital literacy. Those who owned a smartphone tended to be younger and better educated. Older adults who were better educated, of Chinese descent (the ethnic majority in Singapore), and who had lower digital literacy, were most willing to enroll in the digital literacy education program. Social-use digital literacy had a positive indirect effect on well-being ([Formula: see text]) and Quality of life ([Formula: see text]), mediated by social connectedness and loneliness. In contrast, instrumental-use digital literacy had a negative indirect effect on well-being ([Formula: see text]) and Quality of life ([Formula: see text]), mediated by social connectedness and loneliness. The results suggest there are demographic barriers to participation in DLPs and highlight the benefit of focusing on enhancing social-use digital literacy. Further study is needed to evaluate how well specific interventions to improve social-use digital literacy help to reduce social isolation and loneliness, and ultimately improve wellbeing and quality of life.

IntroductionDuring the COVID-19 pandemic, safe-distancing measures resulted in many community-dwelling older adults being socially isolated and lonely, with its attending negative impact on wellbeing and quality of life. While digital technology may have mitigated this, older adults of low socioeconomic status (SES) are more likely to be digitally excluded and hence susceptible to the adverse effects of social isolation and loneliness. This study aims to understand the factors that affect digital literacy, smartphone ownership, and willingness to participate in a digital literacy program (DLP), and to test the hypothesized relations between digital literacy, social connectedness, loneliness, wellbeing, and quality of life amongst community dwelling older adults of low SES.Materials and methodsA questionnaire assessing digital literacy, social connectedness, wellbeing and quality of life was administered. Socio-demographic variables, pre-existing internet-enabled, and willingness to participate in a home-based DLP was also collected. Logistic regression was used to identify demographic factors associated with digital literacy, smartphone ownership, and willingness to enroll in a DLP. Serial mediation analysis was also performed using a structural equation model framework.ResultsA total of 302 participants were recruited. Female gender, older age, lower education levels were associated with lower digital literacy. Those who owned a smartphone tended to be younger and better educated. Older adults who were better educated, of Chinese descent (the ethnic majority in Singapore), and who had lower digital literacy, were most willing to enroll in the digital literacy education program. Social-use digital literacy had a positive indirect effect on well-being () and Quality of life (), mediated by social connectedness and loneliness. In contrast, instrumental-use digital literacy had a negative indirect effect on well-being () and Quality of life (), mediated by social connectedness and loneliness.DiscussionThe results suggest there are demographic barriers to participation in DLPs and highlight the benefit of focusing on enhancing social-use digital literacy. Further study is needed to evaluate how well specific interventions to improve social-use digital literacy help to reduce social isolation and loneliness, and ultimately improve wellbeing and quality of life.

Older adults are particularly vulnerable to social isolation and loneliness, and these factors amplify modifiable cardiovascular (CVD) risk factors for those with existing CVD. A range of interventions have been reported in the literature. This systematic review aimed to evaluate the impact of non-pharmacological interventions targeting loneliness and social isolation experienced by older adults in this target group, who are living independently or in residential facilities. Four databases (Embase, Medline, CINAHL, and PsycINFO) were searched. Papers were screened by two independent reviewers and included if they were in English, evaluated interventions addressing loneliness, social isolation, or social support in older adults (mean age ≥ 55) with CVD. Eligible papers included qualitative and quantitative designs with outcomes related to quality of life, lifestyle factors, or cardiovascular biomarkers. Randomised controlled trials were assessed using the Cochrane risk-of-bias tool (Version 2). Methodological quality was evaluated using the Critical Appraisal Skills Programme (CASP) or the Mixed Methods Assessment Tool (MMAT). The replicability and reporting of papers was documented against the Template for Intervention Description and Replication (TIDieR) checklist and the RE-AIM framework. 8451 papers were identified, hand-searching identified a further 16. 5396 papers were screened for title and abstract after de-duplication. One hundred and eighteen papers were assessed for inclusion. Twelve papers were included, representing 11 studies, with interventions delivered to 651 participants across seven countries. Group-based activities, particularly those combining exercise and education, were the most common and consistently demonstrated improvements in social support, psychological wellbeing, and quality of life. Four papers reported statistically significant improvements in social support, while one reported a decline. Psychological outcomes improved in four papers, and quality of life improved in four out of five papers. Face-to-face group interventions demonstrated improvements across several key outcomes, including reduced loneliness, psychological wellbeing and quality of life. This review suggests face-to-face group-based exercise and education programs may provide a basis for improving loneliness and social isolation in older adults with existing CVD. Further research is warranted given the limited number of studies that have targeted this population group and there is a need for high quality studies detailing reproducible interventions to guide evidence-based practice.

Background: This prospective multicenter study aimed to investigate the courses of positive support (PS) and detrimental interaction (DI), two different aspects of social support, and the relation between social support and psychosocial distress and/or health-related quality of life (HRQOL) in a large sample of patients with different cancers.Methods: For this observational study, we enrolled adult patients with cancer from 13 comprehensive cancer centers (CCCs) in Germany. We included a total of 1087 patients in our analysis. We assessed the outcomes via standardized self-report questionnaires at three measurement points: at admission for acute care (T1), 6 (T2) and 12 months (T3) thereafter. Our outcome variables included PS and DI, depression and anxiety symptoms, distress, mental quality of life (MQoL) and physical QoL (PQoL). Data were analyzed using three-level hierarchical linear modeling (HLM) and group-based trajectory modeling.Results: During the first year after the cancer diagnosis, both PS and DI decreased in our sample. Baseline depression symptom severity was a significant predictor of PS and DI. Further analyses revealed significant associations between PS, DI and the course of depression and anxiety symptoms, and MQoL. PS buffered the negative effects of DI with regards to these variables. Low DI was associated with better PQoL, whereas PS was not. In general, the impact of social support on psychosocial outcomes was weak to moderate.Conclusions: Our findings provide evidence for the influence of PS and DI on psychosocial symptoms and HRQOL, and emphasize the importance of psycho-oncological interventions that strengthen PS and prevent or reduce DI for patients with cancer and their relatives.

Pertencente à família Coronaviridae, o Sars-Cov-2 é um vírus envelopado de RNA causador da síndrome respiratória aguda grave. Como medida preventiva à propagação do vírus, a OMS sugere aplicação da quarentena e isolamento social, o que vem implicando na qualidade de vida, tangenciado no bem-estar psicológico dos indivíduos, resultando no aparecimento de stress, medo, ansiedade, pânico, culpa e tristeza, pois esses indícios refletem em sofrimento psíquico e culmina para o surgimento de transtornos psicossomáticos. O presente estudo objetiva relatar a experiência de graduandos em enfermagem na investigação dos impactos da pandemia de Sars-Cov-2 e isolamento social na saúde mental das pessoas. Trata-se de um estudo de abordagem quanti-qualitativa, do tipo relato de experiência, desenvolvido em duas etapas, a saber: 1 - coleta de dados e 2 – discussões de resultados. Dados do estudo revelam que 95,24% dos participantes apresentam ou apresentaram sentimentos negativos causados pelo isolamento social, sendo a preocupação o sentimento de maior impacto. Além deste, estão presentes também o estado de alerta excessivo e a falta de controle emocional, que podem ser originados pelas várias notícias negativas que circulam pelos meios de comunicação, distanciamento de familiares e amigos, quebra da rotina, além das fake news. Diante do exposto, evidencia-se a necessidade e a importância em desenvolver estudos e ações de saúde que venham a contribuir na promoção do autocontrole emocional, a fim de garantir uma boa qualidade de vida em tempos de pandemia e isolamento social.