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  • https://doi.org/10.1542/peds.2016-3692Copy DOI Icon

Language Matters: Identifying Medically Complex Children in Foster Care.

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Abstract

* Abbreviation: CSHCN — : children with special health care needs An estimated 428 000 children are in foster care in the United States1; half of those children experience chronic medical problems and unmet health care needs.2 These ∼200 000 children span a spectrum from low to high health care needs and utilization,2 with the most complex having frequent hospitalizations and significant home care burdens.3 These children with medical complexity have multisystem, long-term diseases, and/or functional limitations that result in high care needs, high health care utilization, and often rely on medical technology.4 Although the majority of children enter foster care because of neglect or abuse, sometimes a child with medical complexity will enter foster care because his or her daily care needs outstrip their families’ resources or capabilities.1 They are often placed in medical foster care with foster parents who receive medical training, reimbursement at higher rates than typical foster parents, and special services (eg, respite, support groups) to match the needs of the medically complex foster child. Children with medical complexity account for one-third of all pediatric health care spending and expectedly have some of the most expensive care needs among children in foster care.5,6 Medical foster care is typically the most expensive foster placement in terms of daily rates provided to foster parents, although payment incentives have not increased the number of medical foster parents to meet the current demand.7 Not much is known about the outcomes of children in medical foster care or about the value of the federal and state resources dedicated to this population. Most available … Address correspondence to Renee D. Boss, MD, MHS, Department of Pediatrics, Johns Hopkins University School of Medicine, Berman Institute of Bioethics, 1809 Ashland Ave, Baltimore, MD 21287. E-mail: rboss1{at}jhmi.edu

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